Saturday, September 12, 2009

The LAST two days...Plus a little more...



Howdy! Alright, we made it through a tough couple of days. On Thursday, Aly had an appointment with the hip specialist, and her hip looks great! The orthopedist was more concerned with the slight curvature of her spine, wanting to re-check it in six months. Scoliosis can happen when a girl has Rett Syndrome, especially since our Aly cannot sit without major support and cannot stand at all anymore. She had a tough time sitting in her wheelchair for such a long time. We left at 7:45am and finally got home just before noon. Poor Aly struggled with tachycardia, and we finally see the cardiologist this Tuesday!

On Friday morning, Cam had his sleep-deprived EEG. Preparation for that test began Thursday night since Cam was allowed only four hours of sleep. After getting the rest of the kiddos to bed, William played board games and on the computer with Cam until midnight when Cam looked up at Daddy and said, "Too tired; all done," and proceeded to get into my bed, falling right to sleep. The alarm awakened us at 4am and we began our day watching Cam's favorite shows, eating, showering, and playing until the rest of R7 needed to get ready for school. William kept Cam awake on the ride (in the rain) to Medical City Dallas. We checked in, and our boy was a super star at tolerating all the probes "glued" on his head and chest. He barely stayed awake long enough to answer the tech's questions and fell right to sleep. TEN MINUTES later the child had to be awakened! He was such a trooper!

Thanks for all of your prayers. We hope to get results soon from all of Cam's tests. This upcoming week we visit with the cardiologist, my mom and dad leave for a ten day trip, and we return to our usual schedule of homeschooling and therapies. Also, we're starting the process to begin speech therapy with our local school district which means additional meetings(ARD's) and might mean additional testing. UGH!

Okay! So that was the LAST two days...plus here is a little more...

For those of you who really know our family, you know how we dream of serving in Kenya some day when, if ever, the Lord drastically changes our circumstances. Until that amazing day happens, we follow our friends who already answer the call as missionaries in Kenya. We live vicariously through Steve and Nancy Peifer as we wait for updates on their website (click on website) where recently Steve explained that there is no more money to buy food to serve the children in their school lunch program. I thought I might give some of you a "heads up" on their website, and if you feel led please consider giving some change to make a change for students in Kenya.

Okay! Thanks for allowing me to share the last two days...plus a little more with you. As usual, we'll update when we have a couple of answers. I seem to enjoy updating of FB so don't forget to check on us there. I hope your week will be grand! M&R7