Overwhelmed Mom...

Howdy everybody! I started this blog last November for two reasons: To alert everyone of our urgent prayer requests and to keep family/friends updated about the "happenings" of the Rumuly 7, especially in times of need or crisis. Really, I look over the last few months and realize that our family definitely has been blessed with good health which has awarded me the enjoyment of writing stories for the blog instead of relating to everyone our special needs.

It seems time that we meet with the inevitable, so today my blog will not be a funny story but one to request intersession for our family during some recent difficult circumstances. Instead of going into lengthy detail I have decided simply to list without too much explanation specific prayer needs in hope friends/family reading our blog will lift up our family. I've included some quick links for those with time and interest. Thanks in advance for keeping up with us.

1. Safety with sedation for Cam and clear results of MRI (brain&spine) which is scheduled for Thursday, April 23, investigating further Cam's tethered cord

2. A second try to get Cam into Scottish Rite to get a specialist to examine thoroughly his feet for the possibility of partial clubbing and treatment if needed

3. Drawing blood work from Aly that includes a new comprehensive test for Rett (including finding any deletions), correction of a problem with her thyroid level (high) and testing of her seizure medicine levels

4. Coordinating a time to travel this summer to Houston to visit with the Rett Team of specialists, including a cardiologist, at the Blue Bird Circle Center for RS in Texas Children's Hospital

5. Consulting with a urologist concerning possible damage done to some of Cam's organs and any testing if needed

6. Keeping normalcy for everyone in spite of the added stress of phone calls, doctors' appointments and testing

7. Ethan's possible tic disorder not interfering with his studies or ability to not be a distraction in the classroom and seeing Dr. Owen this summer

6. Filling out the paper work to add Cam to the waiting lists for medicaid-waiver programs which take 6-10 years to receive

7. The twins have colds (Kas also has a cough) and Aly to stay healthy


These are the most pressing of my recent concerns. Will also needs prayers concerning work and availability to attend appointments with me and the children. Thank you so much friends and family. I hope to return soon to my regular blogging where I enjoy telling stories about the Rumuly 7. It seems once again that my plate is too full for my eyes.

"Because he loves me," says the Lord, "I will answer him;
I will rescue him;
I will protect him, for he acknowledges my name.
He will call upon me, and I will answer him;
I will be with him in trouble,
I will deliver him and honor him.
With long life will I satisfy him
and show him my salvation...
Psalm 91:14-16


I'll update later, the overwhelmed M&R7