The Next Two Days...plus maybe a little more...

Instead of including a long-winded post using metaphors about the weather and horse races to make our busy life sound funnier, I have just a moment to list quickly what we know so far and what the next couple of days hold for us.

1. Cam did really well for the sleep study, tolerating all the probes on his head, chest and in his nose! The pediatrician cannot read those results so we're hoping the neurologist can explain them when we next see him.

2. Cam has been diagnosed with Verbal Apraxia. Click on the bold words for more information.

3. Cam's Level 3T MRI of the brain last week went amazingly well with little discomfort and no crying when he awakened from the sedation!

4. Aly has been happy for home-bound school time with Ms. Gaspard, even though none of her current health issues with tachycardia and thyroid have been resolved.

5. Thursday (Sept. 10) Aly visits with the hip specialist (orthopedist) at Dallas Children's concerning the xray and bone scan which both show a problem with her hip.

6. Friday (Sept 11) Cam has a "sleep-deprived" EEG, requiring he sleep no more than four hours. Click on EEG for information.

7. Each of the next five weeks, Aly and Cam have numerous appointments with specialists, plus any testing that Aly might need still. We hope to get results and treatments as we see the different doctors.

8. In early October, we see a Rett specialist in Houston at Texas Children's Hospital (scheduled since early March) depending on Aly's health and ability to tolerate sitting up for long periods of time. We still need to make travel plans and accommodations, but we're not sure she can make such a long trip.


Thanks for keeping up with us. I hope to post again this weekend if we really survive the night and morning leading up to Cam's EEG. Of course, you can follow us on Facebook where I will try to update more often. Really, thanks for praying. You're right: we know very little at this point and must continue to wait for test results, doctor consultations, and treatments. We hope by mid-October to have everything that Cam and Aly need. We'll let you know how the next two days go...plus maybe a little more, M&R7